MRI results are in .........(gulp) Well yesterday came and I thought it was gone seeing I was waiting all day for the results of Zachary's MRI. Well it was about 6pm last night and my cell rings. Unkown number so of course I answer right away. Yeppers it was his dr calling with the results.
Unfortunately she is not very optimistic about the results. The MRI shows many tumors on his bones and some have grown in size. There is also weakening of the femur bone along with the ankle area. Dr. Palomino says we need to keep him calm, and inactive. Well like she said with Zachary that is going to be a full time job, so she is now taking away all gym activities (no gym in school) and is as anxious to see what the Dr.'s in Boston are going to have to say about treatment. She is hoping maybe they will try Biophosonate thereapy (could of spelled that wrong) or surgery to put rods down the middle of his bones. She stated that even if they put rods in he is still at high risk of fracture/break just not a total break because of the support from the rods. She is also suggesting that we get a molded brace for his left side to help keep the leg supported so that can take some stress off his bones. (As parents we are thinking that will help slow him down since it would be made of hard plastic) The Dr. also stated with the tumors growing, and bone weakening this is why Zachary is having more pain, and problems.
So for right now Rob and I have decided we are going to wait to go to Boston at the end of the month to see what they say and go from there. I would hate to go through with the brace right now and then have them say no he doesn't need that lets do something else. We did finally find a stroller for him and he really likes it so thats a plus for us.
So please everyone keep Zachary and our family in your thoughts and prayers and hope we have a great trip to Boston with some much needed solid answers. So as of right now we are just being very cautious with what he does and how he is acting towards things. I can tell you the last couple nights have been nightmares again with him up and in pain, so we are just medicating and hoping that these 3 weeks go by really fast.
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1 comment:
Will be praying for little Zachary and for the whole family as you all endure this trial.
Amy from the Cricut MB
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