We went to the Neurologist on Thursday 1/20/11. We spent well over 1 hour in the room with 2 doctors. Zachary had to explain what he was feeling, we as parents had to tell our side, and they reviewed the eeg notes and agreed they believe it is seizures but what type? How often? How long? Those are all the questions. Then of course the question how should we treat this? Well they upped his medicine from 1/2 tsp 2x day to 1 tsp 2x a day. Also his Vit. B6 was upped to 2x a day. B6 is suppose to help with the side affects from the medicine. They also, want to do a 24 hour EEG and said it would be a couple weeks before it got scheduled since we would have to go to Rochester get him hooked up and be there for 24 hours. So I thought kick and asked if it could be coordinated with Boston since in 3 weeks we will be in Boston for his Surgery. They are going to work on that they said because it makes sense. Thank God for some ease on some of the tests/appointments we have to go through.
Well since he has been on the medicine he has had 2 episodes that he has told us about. I think he had 1 the other night when he came back from his grandparents but he says he didn't he was just sad he couldn't get this tractor from the tractor store. So in 1 week only 2 so far. Well its better than the previous weeks without the medicine. I am just scared because once his 24 hr EEG is scheduled he has to be off the medicine for 7 days prior to it. I sure hope that doesn't make for a long week for him. He will be under enough stress at that time.
We are off to the nephrologist on Tuesday for that follow up and lots more questions on why the kidney size difference. Please keep us in your prayers.
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