.................................Decisions, Decisions, Decisions

Some of you may already know what we are up against from chatting on the phone, but for those of you that don't know here it goes:

We went to Boston again on 11/20 & 11/21. We met with 3 doctors 1 was genetics again and all the tests weren't back due to miscommunication. (Who would of thought can anyone get anything straight this day in age?) Then we where off to meet the orthopedic surgeon. Well let me tell you Dr. Spencer was TOTALLY amazing and the amount of time she spent with us was a total pleasure. She def. didn't make us feel rushed, she explained what the surgery is, what will happen, what can happen, what recovery will be like. Then turned it over to us for questions. Rob pretty much kept Zachary busy while I asked questions. Just when you think you have all your questions wrote down more keep popping into your head. Anyway, she said the surgery is needed but its up to US as to when we do it. What a awful feeling that is.......and of course we can't agree on a time frame. She said its not needed immediately meaning like now or else, but its needed. Rob seems to think we should wait because he will be older, he will understand more, and we can keep him down for the 4-6 weeks they are talking for recovery. I seem to think we should do it more sooner than later. My reasoning: he is 44 lbs now and with a 10 lb cast I can still maneuver him, if you do it when they are younger maybe he wont remember it as much, I am scared all the time that he may have a fracture/break, and I think if he is going to miss school he should miss kindergarden over any other grade. So we left there with no definite answer, but to talk it over and call them back. I almost wish they would of just said we are doing it on such and such date.

After that appointment we went to the hematology/oncology dr and she wants to try a experimental drug on him just before he has the surgery and for a couple months after. She is hoping it will help with the healing and lower his pain tolerance level. Yes he is like his mother no pain felt. And with that happening he is not letting his body/skin tissues heal properly.

SO after that very long morning of appointments we are at this point:
1. Deciding when to do the surgery
2. Preparing everyone for the surgery
3. And praying we make the right decision (which they keep telling us no decision is a wrong decision because he needs it done regardless.)


So when Zachary has this surgery he will be having Fassier Duval Rods placed in his Femur & tibia, a bone graft, and biopsy's of the tumors. He will be in a spica cast for 4-6 weeks also which means homebound for all of us so please keep us in your minds when this happens to stop by and see us. We will need distractions!!!!!!!

And possible best of all in Zachary's eyes:
HE MIGHT BE ABLE TO PLAY BASEBALL AGAIN!!!


So what is all of your opinions if you where in this situation? Please leave comments to let us know because we have been asking everyone we know and then we sit and talk it over and add to our pros/cons list.