...............Boston Appointment 10/14/11

Friday we went back to Boston for an appointment with Dr. Spencer for Zachary. The weather was kinda yucky on and off rain the whole way there and back. Sometimes so hard you couldn't see in front of you. Coming home as usual we hit traffic on the Mass Turnpike.

We got to the CHB and went right in for xrays. The xray tech this time was really nice and joked around a bit with Zachary. Right up Zachs alley if you ask me. When he would load the xray on to the computer I would stand right there and look at it and knew it still wasn't completely healed. I pointed the area out and he agreed. First time a tech agreed, usually they can't say anything but I think he knew I have seen enough of these xrays of Zachs leg. The xrays of the tibia looked GREAT! But I was concerned for the first time of the fibula. I commented on the looks of it and he said it looks to be the bone is weakening.

Once done in xray we went up to Ortho. We sat down and Zach was goofing around with the clowns that visit throughout the hospital and within 5 minutes we were called into a room. Did I ever mention how I love getting right in and out? Dr. Spencer came in and we discussed how he was feeling, remeasured is length difference and she agreed the 1 1/2 inch lift if perfect for him. She asked Zach a couple questions and he admitted he has pain. This was a first for Zachary. Usually he doesn't admit to it because he doesn't want more medicine, and doesn't want me to call the Doctor. So she said he is having the pain because the femur is only 50% healed. It does have some nice bridging of the bone graft but not enough to release him yet. He sure tried to get her to release him to do many things but she compromised with him and is allowing him to do upper body things only in gym, and bowling. He wasn't to happy but accepted the fact. He would keep saying, "Dr. Spencer I have a question, Can I do this or that?" And she would just respone, "No Zachary I don't think thats a good idea" he would then repeat but ask about something else. It went on for about 5 minutes before she just busted out laughing and said, He sure will try to get his way won't he." We were like uh yeah try living with him. LOL

So then I questioned the fibula and the way it looks. She was concerned too and said the tumors/Non-Ossifying fibromas have gotten bigger. So what that means is the bone is getting weaker in areas and is at risk of break/fracture. She said she wants to watch it for now because its not a weight bearing bone and if they have to go back in and do a bone graft for the femur again they will bone graft the fibula. So we just need to watch and make sure he doesn't complain of more pain than usual in that area. So the plan is to give it 4-6 months longer to heal, if it isn't healed then we will discuss surgery again for another bone graft of the femur and then the fibula. Zachary asked if he could wait till the 6 month mark because it will be April and the Red Sox will be playing and he wants to go to a game. Dr. Spencer said thats ok as long as he doesn't have any problems or complain of anything.

So all in all it was a ok visit, but didn't take any concerns off our minds for the little man. Dr. Spencer did give us a script for a medical pushchair for distances for the little guy since he doesn't last long walking anywhere. Now to hope insurance will cover it. I am sure its going to be a fight but we shall see.