Our friends are having a fundraiser to bring their 2 older children along with them to China to adopt a little boy. This will be their 2nd adventure over and a very exciting one to be able to share the experience with their older children. The raffle ends this Saturday, August 1st at midnight. They have some awesome prizes for this giveway. Their blog address is: http://tochinaforevan.blogspot.com/

..................SeaBreeze

On Sunday we took the kids to seabreeze in Rochester. They had such a good time I am glad we decided at the last minute to go. The weather wasn't the warmest (they didn't even do the water rides) but we had a wait time of no longer than 5 minutes on a couple rides otherwise it was walk on most. Zachary is on the short side so there where a couple he couldn't do so Robert & Marissa went on together. But the ones Zachary could do he sure did them. I was just a spectator as I am not a rollercoaster type of person anymore. Usually they knock my back out and then I am paying after so not worth it to me. LOL

Zachary on the carasoul.

If you look toward the back you see Marissa in a tie died shirt and Zachary with his arms up. he was so enjoying himself. (Click on the pic and you can see it bigger)

Little Zachary int he middle smiling away. Marissa was happy she had someone to go on the rides with this year.

........................She is a teenager now

Sorry this is so late but time seems to just get away. Nothing really new on this end, we just celebrated Marissa's 13th bday. I can't believe myself its been 13 years. WOW!!!!!!!!!! We are preparing for Marissa to go camping for 1 week with Nonnie Judi and the family from Buffalo, then home for 1 day and then off to Las Vegas with Uncle Tony & Gracie for 2 weeks. Yep I said my teenager is going to Vegas. She is so excited and can't wait to be spoiled rotten. Which we all know will happen gosh she already has a nice gift waiting for her when she gets there. I am sure with that nice new Pink Canon Elph camera we will get lots of pictures. LOL

Chelsea decided she wanted to get Marissa in the face with the cake. The funny part is Marissa got it in the face, but lifted her arms up and re-mooshed it in Chelsea's face. Guess they weren't thinking quick enough to move out of the way for reactions.



Marissa opening gifts with the help of her brother. LOL Not sure if I will get all the girls straight but heres a try from left to right (Zachary, Marissa, Abby M, Brigid C, Kaylei S, Taylor M, Julie D, Leanna A, Hailey V, Megan Q, Rachel P, & Chelsea P.

..............................Wordless Wednesday

...............................Never easy is it?

Can anything ever be easy? Not in my life it seems that way. Zachary has been getting this bruise on his lower back just above his sacrum area for no reason at all. Well I was watching it because the first time I honestly thought he fell and just didn't tell us since he is afraid he will have to go to the Doctors again. Well to make a long story short the bruise comes and goes. About 2 weeks ago he had one 9cm x 12cm and it was painful to him. Painful enough he asked for tylonal which never happens with our tough guy. I got so nerveous because of the size I took him to his pediatrician to have it looked at. Well he was like uh, uh, I think its this, I don't know really, maybe its part of the syndrome that they don't know much about. I demanded we start at the bottom and do blood work and go from there. Well his labs came back ok and his physical therapist in the mean time says I should probably call his ortho in Syracuse. Well his pediatrician decided to do a ultrasound.

The US results came in that there is no cyst (Thank God), but there is large vascular structure. Well we called his genetics Dr. in Boston to see what she thought and they are reviewing the US disk (being sent to Boston) and want to see him. They referred us to the Vascular Anomolies Center. So we go in August with our scheduled Orthopedic appointment. We have to keep an eye on this and keep taking pictures when it reappears. Well he has another one again and its almost as big as the other one. I just wish things would get better for the little guy.

In my opinion I think its something to do with his leg length difference. Its more prominent and he limps big time now compared to before his surgery (he had a growing spurt and of course the left side didn't grow with the Right) and something is pinching in there and causing this. They did say that could be a possibility. I sent them my pictures I have been taking and I had a really good shot of him standing and you could compare the way he stands and hip placement.

Well thats about it for now. Just going to enjoy our long weekend together this weekend. Not sure what we will be doing but Rob has relatives in from Texas (haven't been here in over 5 yrs) and the family is having a picnic. We also have a double header baseball game & bday party on Sunday and Sunday is Marissa's bday. Can you believe she is going to be 13 already. Time sure does fly.